Her name is Keanna, she's only eight years old and every day is a struggle.
That's because the young London girl is living with a rare and chronic kidney disease.
But her many challenges aren't dampening her spirit.
Keanna is now turning to the generosity of strangers on the Internet to ask for help as she waits for a transplant.
"When she first fell ill, she was a happy go lucky kid. Now she's taking over 20 medicines a day," says Sara Shrubsall, Keanna's mother.
Two and a half years ago, life changed for the Shrubsall family.
"We thought she was allergic to penicillin, her eyes started swelling up," says Sara.
The allergist ruled that out after some tests and then a specialist pinpointed the problems.
"We didn't know what was going on with Keanna and then to find out she had Nephrotic Syndrome, which is quite rare. And then a month and a half later after a biopsy we found out she has the rarer type of Nephrotic Syndrome," says Sara.
FSGS affects approximately 1 in 100,000 people and there are only four known cases in Ontario.
It starts with protein leaking out of the kidneys.
After two years of fighting the disease with medication to try to send it into remission, Keanna's kidney's are failing.
She begins dialysis on Monday and will continue that until a donor can be found.
"It's been a roller coaster ride, we'll be on the dialysis until we find either a living donor or a desceased donor. It could take up to four years and even then there's a 30 per cent chance of it coming back," she says.
That means many more visits to the hospital.
Last year, the family spent over $800 on parking alone.
So they've started a GoFundMe page: http://www.gofundme.com/nlfnkw
The goal is $10,000 to pay for medications not covered under plans or the dispensing fees for the ones that are.
You can learn more about Keanna by searching "Keanna's Hope" on Facebook or https://www.facebook.com/groups/1559650134286759/permalink/1559696080948831/
