'It's a horrible disease'; Londoners walk to raise funds for ALS support and research
Over the past two months, Lou Gehrig's Disease has taken two people close to Erin Fickling.
On May 3, 2021, her mother Joan Sinclair passed away from ALS, while just a month earlier her friend Mario Vella passed away after a battle of more than two decades.
Sunday morning, Fickling and her 'Team Forget Me Not' were taking part in the Walk to End ALS in London, Ont.
"It's a horrible disease," says Fickling.
"It just slowly takes away your abilities to function and your independence, where you become slowly relying on everyone else to do everything for you. It's a physical and mental battle for the people that are afflicted".
The progressive neurological disorder which results in weakened muscles and deformity is rare. Less than 100 people have the disease in SW Ontario.
Her mother was diagnosed three years ago at the end of 2018, and like many others with ALS, lived for under three years.
Erin Fickling (R) and her sister Heather Sinclair (L) lost their mother Joan Sinclair (Centre) to ALS on May 3, 2021
"We made the best of it and we took her on a trip to Alaska as a wish trip," says Fickling.
"Even to the end she was doing really well considering with the disease. She was still able to talk a little bit at the end and texting to communicate so at least we were able to have that".
In a typical non-pandemic year, the London walk would be one of the biggest in the country. This year they had 79 participants, and even going virtual, it was a success.
"I'm really excited for the London area because they have surpassed $80,000 raised," says Sheila Dorsch, regional manager for ALS Canada.
"In Ontario we have surpassed $1.3 million raised for community services as well as research".
This month Awareness for ALS was heightened by Major League Baseball, the CN Tower being lit purple, and Niagara Falls recognizing the disease by adding colour for the first time.
With no cure, funds raised will go toward research which will hopefully improve quality of life.
"There's there's ongoing research with exciting clinical trials," says Dorsch.
"We can always hope, and I feel that events like this will bring more awareness. We are a donor funded health charities so we rely solely on the generous donations from the community. The money goes to community support as well as the best Canadian research that we can get".
Well-known Londoner Mario Vella was a staple at the local walk. This is the first one since one of Canada's longest ALS survivors passed away in early May. The normal life expectancy for a person with ALS is 2-3 years, but Vella defied the odds living for more than 25.
Mario Vella, seen at the London, Ont. ALS walk in 2019, passed away in April 2021 after surviving for 25 year with ALS
"I met Mario at Forest City Community Church (FCCC) and I was drawn to him as he was just an amazing inspiration of a person," says Fickling.
"He was always checking in on me and my mom to see how we're doing and offering advice. It was definitely a tragic moment when he was gone, but we are walking here at beautiful Springbank Park in his memory. He loved to spend time here and go with his 'angels' (the term he used for his PSW's).
Next month the FCCC in Lambeth will hold another bottle drive in honour Vella. Proceeds will go towards a memorial Bench at Springbank Park, one of his favourite places to visit.
CTVNews.ca Top Stories
Canada's most wanted fugitive arrested in P.E.I. in connection with Toronto homicide
A suspect in a fatal shooting in Toronto’s east end last summer has been arrested in Charlottetown, just one week after he topped a list of Canada’s most wanted fugitives.
BREAKING Federal employees will be required to spend 3 days a week in the office
Starting in September, public servants in the core public administration will be required to work in the office a minimum of three days a week. The Treasury Board Secretariat says executives will need to be in the office four days per week.
Concerns about plexiglass prompt inspections at some Loblaws locations in Ottawa
Inspections are underway at more than one Loblaws location in Ottawa after complaints were filed about tall plexiglass barriers.
OPP officer said 'someone's going to get hurt' before wrong-way Hwy. 401 crash
As multiple Durham police cruisers were chasing a robbery suspect on the wrong side of Highway 401 Monday night, an Ontario Provincial Police officer shared his concerns, telling a dispatcher, "Someone's going to get hurt."
Poilievre unrepentant over calling Trudeau 'wacko' as his MPs say Speaker should resign
An unrepentant Pierre Poilievre returned to the House of Commons on Wednesday to pepper the prime minister about his drug decriminalization policies after being booted the day prior for refusing to take back calling Justin Trudeau 'wacko' over his approach to the issue.
Five human skeletons, missing hands and feet, found outside house of Nazi leader Hermann Göring
Archeologists have unearthed the skeletons of five people, missing their hands and feet, at a former Nazi military base in Poland.
Toddler of Phoenix first responder dies after bounce house goes airborne
A two-year-old child died after a strong gust of wind sent the bounce house he was in airborne and into a neighbouring lot in central Arizona, the Pinal County Sheriff's Office said.
Plane overshoots runway at airport in St. John's, N.L., no injuries reported
Investigators from the Transportation Safety Board of Canada are headed to St. John's, N.L., after a plane overshot a runway at the city's airport this afternoon.
A teen was found buried in a basement in New York. An engraved ring helped police learn her identity two decades later
For more than two decades, the unknown victim was nicknamed "Midtown Jane Doe" because she was found in the Hell's Kitchen neighbourhood of New York City. But this week, investigators finally revealed her identity.