'It's a horrible disease'; Londoners walk to raise funds for ALS support and research
Over the past two months, Lou Gehrig's Disease has taken two people close to Erin Fickling.
On May 3, 2021, her mother Joan Sinclair passed away from ALS, while just a month earlier her friend Mario Vella passed away after a battle of more than two decades.
Sunday morning, Fickling and her 'Team Forget Me Not' were taking part in the Walk to End ALS in London, Ont.
"It's a horrible disease," says Fickling.
"It just slowly takes away your abilities to function and your independence, where you become slowly relying on everyone else to do everything for you. It's a physical and mental battle for the people that are afflicted".
The progressive neurological disorder which results in weakened muscles and deformity is rare. Less than 100 people have the disease in SW Ontario.
Her mother was diagnosed three years ago at the end of 2018, and like many others with ALS, lived for under three years.
Erin Fickling (R) and her sister Heather Sinclair (L) lost their mother Joan Sinclair (Centre) to ALS on May 3, 2021
"We made the best of it and we took her on a trip to Alaska as a wish trip," says Fickling.
"Even to the end she was doing really well considering with the disease. She was still able to talk a little bit at the end and texting to communicate so at least we were able to have that".
In a typical non-pandemic year, the London walk would be one of the biggest in the country. This year they had 79 participants, and even going virtual, it was a success.
"I'm really excited for the London area because they have surpassed $80,000 raised," says Sheila Dorsch, regional manager for ALS Canada.
"In Ontario we have surpassed $1.3 million raised for community services as well as research".
This month Awareness for ALS was heightened by Major League Baseball, the CN Tower being lit purple, and Niagara Falls recognizing the disease by adding colour for the first time.
With no cure, funds raised will go toward research which will hopefully improve quality of life.
"There's there's ongoing research with exciting clinical trials," says Dorsch.
"We can always hope, and I feel that events like this will bring more awareness. We are a donor funded health charities so we rely solely on the generous donations from the community. The money goes to community support as well as the best Canadian research that we can get".
Well-known Londoner Mario Vella was a staple at the local walk. This is the first one since one of Canada's longest ALS survivors passed away in early May. The normal life expectancy for a person with ALS is 2-3 years, but Vella defied the odds living for more than 25.
Mario Vella, seen at the London, Ont. ALS walk in 2019, passed away in April 2021 after surviving for 25 year with ALS
"I met Mario at Forest City Community Church (FCCC) and I was drawn to him as he was just an amazing inspiration of a person," says Fickling.
"He was always checking in on me and my mom to see how we're doing and offering advice. It was definitely a tragic moment when he was gone, but we are walking here at beautiful Springbank Park in his memory. He loved to spend time here and go with his 'angels' (the term he used for his PSW's).
Next month the FCCC in Lambeth will hold another bottle drive in honour Vella. Proceeds will go towards a memorial Bench at Springbank Park, one of his favourite places to visit.
CTVNews.ca Top Stories
CRA no longer requiring 'bare trust' reporting in 2023 tax return
The Canada Revenue Agency announced Thursday it will not require 'bare trust' reporting from Canadians that it introduced for the 2024 tax season, just four days before the April 2 deadline.
He didn't trust police but sought their help anyway. Two days later, he was dead
Jameek Lowery was among more than 330 Black people who died after police stopped them with tactics that aren’t supposed to be deadly, like physical restraint and use of stun guns, The Associated Press found.
Fluid in eye cells can 'boil' if you watch the eclipse without protection: expert
Millions of people in parts of Eastern and Atlantic Canada will be able to see the rare solar eclipse happening on April 8. But they should only look up if they have proper eye protection, experts say.
Ontario urges mpox testing amid spike in cases
Ontario health officials are urging public health units to test for mpox, the viral disease formerly known as monkeypox, amid a spike of confirmed cases in the province.
NEW More unauthorized products for skin, sexual enhancement, recalled: Here are the recalls of this week
Health Canada and the Canadian Food Inspection Agency recalled various items this week, including torches, beef biltong and unauthorized products related to skin care and sexual enhancement.
Where is the worst place for allergy sufferers in Canada?
The spring allergy season has started early in many parts of Canada, with high levels of pollen in some cities already. Experts weigh in on which areas have it worse so far this season.
Do these exercises for core strength if you can't stomach doing planks
Planks are one of the most effective exercises for strengthening your midsection, as they target all of your major core muscles: the transverse abdominis, rectus abdominis, external obliques and internal obliques. Yet despite the popularity of various 10-minute plank challenges, planking is actually one of the most dreaded core exercises, according to many fitness experts.
Grandparent scam: London, Ont., senior beats fraudsters not once, but twice
It was a typical Tuesday for Mabel Beharrell, 84, until she got the call that would turn her world upside down. Her teenaged grandson was in trouble and needed her help.
'Don't expect any deals:' Expert says stores may not offer steep discounts on post-Easter chocolate
Those looking to snap up cheap treats at their local grocery store next week following the Easter long weekend could be in for a bit of a surprise as the rising cost of cocoa continues to drive up the price of chocolate, one expert says.