A young Ingersoll couple with a child who suffers from a rare genetic syndrome is hoping to find answers from a specialist in Texas.

They're also looking for public support to get there.

Early on, Lyndon Kloss was a typical, happy and smiley baby.

But there were small signs that caused concern, they led to the diagnoses of Christianson Syndrome last January.

"The condition affects Lyndon mentally and physically. He doesn't walk, he doesn't talk and his motor skills are way behind," says Bob Kloss, Lyndon's father.

Christianson Syndrome is the mutation of a gene in the X chromosome causing serious issues for boys, with only marginal impacts on girls because they have two X chromosomes.

Kloss says at this point, Christianson Syndrome is still extremely rare.

"It's a relatively new condition that we've been able to test for. In the last six years they came up with the capability to test for it. Less than 50 people in the world have it, actually diagnosed with it," says Kloss.

Now at three and a half years old, Lyndon has many supports.

The family has some nursing care and will get some funding for specialized equipment like a wheelchair.

But Bob and Nikki both work full time at Autotrans in Ingersoll and caring for Lyndon is demanding.

"Every four hours we have to feed him. It takes an hour to feed him. It takes an hour to feed him and you have to wait a half an hour to make sure he doesn't throw up and then you're feeding him another two and a half hours later. So it's very time consuming," says Nikki Kloss, Lyndon's mom.

The Kloss family has gone through a number of lifestyle changes in order to accommodate Lyndon's needs.

They just recently moved into a small bungalow in the north end of Ingersoll and they're going to have to do numerous renovations.

But their most immediate need is a greater understanding of Christianson Syndrome.

The leading expert in the area is genetics researcher Dr. Eric Morrow from Brown University in Rhode Island.

He's already seen Lyndon and will be speaking at a conference in Texas in August focusing on the syndrome.

That's prompted the Kloss family to launch a crowd funding initiative to make the trip.

"We're hoping we can get some people that will help us out, to send us. So we can benefit Lyndon and learn more about this and quite possibly meet people in this community that have answers for people who in the future might come up with the same issues," says Bob Kloss.

For more information you can visit www.gofundme.Com/jn4l7s or you can contact the Kloss family directly, lyndonstrip@hotmail.com.